Research & reports relevant to early support

[My appeal to scientists: Can you make a short readable version of your paper for practitioners and parents who do not have the benefit of university education? Most of the people around babies and infants who have challenges to learning and quality of life are not graduates but they have a right to understand what your paper is saying. Please send your short version for publication on this website. peter.limbrick@mailfence.com]

85 Comprehensive, multidisciplinary care for fragile X-associated tremor/ataxia syndrome
James A Bourgeois et al. A holistic, person-centered approach coordinated by the primary care clinician with multispecialty and multidisciplinary collaboration is recommended to address the complex needs of FXTAS patients and their support networks.
https://www.researchgate.net/publication/402784791_Comprehensive_multidisciplinary_care_for_fragile_X-associated_tremorataxia_syndrome

84 A Comprehensive and Collaborative Approach to Improving Small Baby Care and Outcomes
Leeann R Pavlek et al. A comprehensive approach to care for these small babies is essential, as changes in management of one organ system can have downstream effects on others. This care plan ideally begins before delivery and involves a multidisciplinary team developing the initial plan of care based on individual patient factors and continues to evolve.
https://pubmed.ncbi.nlm.nih.gov/40295083/

83 Evaluation of a New Parent Support Intervention for Postpartum Depression and Bonding in Mothers: A Pilot Study
Jalpa Prajapati et al. Postpartum is an equally important period for both mother and child; even a minor neglect during this phase can have a lasting adverse effect. The emotional and physical wellbeing of postpartum mothers has a direct link to the health of the newborn, and any degree of neglect may contribute to significant complications.
https://www.scilit.com/publications/2ad87cf437a1352d85ea5e76546f0897

82 The relationship between fathers’ involvement in infant care and infant attachment levels
Kamile Akca et al. This study identified a positive correlation between fathers’ engagement in infant care and the level of attachment between fathers and infants. To strengthen the paternal-infant attachment, fathers should be encouraged to involvement in infant care.
https://link.springer.com/article/10.1007/s11845-026-04281-7

81 Hydrocephalus in infants: the unique biomechanics and why they matter
Harold L Rekate. The time of first intervention for treatment of hydrocephalus is an important part of the history. Treatment strategies should be based on the assessment of the roll of trans-mantle pressure differences in deciding treatment strategies. Following skull closure distension of the ventricles at the time of shunt failure requires a pressure differential between the ventricles and the cortical subarachnoid space.
https://pubmed.ncbi.nlm.nih.gov/32488353/

80 Effectiveness of infant massage on babies growth, mother-baby attachment and mothers' self-confidence: A randomized controlled trial
Zübeyde Ezgi Erçelik et al. Infant massage is an effective method that strengthens maternal attachment and increases body weight and height in infants.
https://www.sciencedirect.com/science/article/abs/pii/S0163638323000899

79 Examining the Effect of Peer-Led Parenting Interventions on the Wellbeing of Parents With Children With an Emotional or Behavioural Disorder - A Systematic Review
Meaghan Reitzel et al. Findings indicate the potential for peer-led parenting interventions to have a positive impact on parent well-being.... Future research is needed to determine meaningful ways to measure parent wellbeing and to better understand what aspects of peer-led parenting interventions positively impact parent wellbeing.
https://journals.sagepub.com/doi/10.1177/13591045261418322

78 Antiepileptic Drug Exposure in Infants of Breastfeeding Mothers With Epilepsy
Angela K. Birnbaum et al. Given the well-known benefits of breastfeeding and the prior studies demonstrating no ill effects when the mother was receiving antiepileptic drugs, these findings support the breastfeeding of infants by mothers with epilepsy who are taking antiepileptic drug therapy.
https://jamanetwork.com/journals/jamaneurology/fullarticle/2758017

77 Non-accidental Trauma as an Example of an Underestimated Problem in Pediatrics: Maltreated Child Syndrome and Shaken Baby Syndrome
Katarzyna Kubińska et al. The role of medical staff is not only to provide medical help but also to ensure the child’s safety and prevent a negative impact on their psychosocial development. Knowing how to recognize the signs of child abuse is relevant.
https://www.cureus.com/articles/377022-non-accidental-trauma-as-an-example-of-an-underestimated-problem-in-pediatrics-maltreated-child-syndrome-and-shaken-baby-syndrome#!/

76 Promoting Survival and Primitive Reflexes to Prevent Brain Imbalance in Premature Infants: A Scoping Review of New Insights by Physiotherapists on Developmental Disorders
Pallavi Harjpal et al. Assessing the primitive reflex in the NICU will help in the early identification of developmental delay and further help us predict reflex maturation. Promoting them will provide positive outcomes in terms of neonatal development. A physiotherapist can play a vital role starting from the NICU to get the baby into an environment similar to the mother's womb and therapy to get the early maturation of the reflex.
https://pubmed.ncbi.nlm.nih.gov/37727176/

75 Understanding school-based rehabilitation services through the lived experiences of children and youth with disabilities: a meta-aggregative review
Amelia Brushett et al. Attending to children's and youths' perspectives can help foster practices and policies that are inclusive, holistic, and child-centered, and supports the development of services that are meaningful, empowering, and promote full participation in school life.
https://www.frontiersin.org/journals/public-health/articles/10.3389/fpubh.2026.1745224/full

74 What makes a good mother? An interpretative phenomenological analysis of the views of women with learning disabilities
Phoebe Kaspar et al. The study describes some of the difficulties experienced by social workers in this area of their work, from their own perspective. It also strengthens existing ideas about improving services for parents with intellectual disability.
https://www.researchgate.net/publication/283343019_Child_and_family_social_workers%27_experiences_of_working_with_parents_with_intellectual_disabilities

73 Does family quality of life get better as the years go by? A comparative mixed-methods study between early years and school-aged children with disability in Australia
Anoo Bhopti et al. Many families are unprepared for the lifelong commitment of caring for a child with a disability. This journey involves continuous adaptation to new challenges. While families strive to remain positive, having a child with a disability impacts daily routines, family occupations, and overall Family Quality of Life (FQOL) more profoundly than raising a child without a disability.
https://www.preci.org.au/wp-content/uploads/2024/11/Research-Snapshot-No-11.docx.pdf

72 The Development and Pilot Testing of a Fidelity Checklist for a Family-Centered Telehealth Intervention for Parents of Children with Motor Delay
Karen Hurtubise et al. This multi-methods study describes the development of a pediatric rehabilitation telehealth intervention fidelity checklist, estimates its inter-rater reliability, and documents raters' implementation experience. A literature scan and expert consultation identified eighteen key behaviors and categorized them into three subdomains, measured using a 5-point measurement system.
https://telerehab.hpu.edu/index.php/Telerehab/article/view/6603

71 Epidemiological trends and burden of nutritional deficiencies among infants in India: Evidences from the Global Burden of Disease study, 1990–2021
Chandan Roy et al. The observed association between subnational SDGs performance and nutritional outcomes underlines the need to enhance primary healthcare services and strengthen nutritional support systems, especially in lagging regions.
https://journals.sagepub.com/doi/abs/10.1177/02601060251392283

70 The interaction between infant negative emotionality and cognition predicts ADHD-related behaviors in toddlerhood
Heather M. Joseph et al. The combination of higher levels of negative emotionality and cognition may result in greater frustration when goals are blocked, resulting in the expression of dysregulated behaviors (i.e., ADHD symptoms). Alternatively....
https://www.sciencedirect.com/science/article/abs/pii/S016363832200056X

69 Transaction of parental cognition, stress and depressive symptoms, and infant regulatory challenges
Agnes Bohne et al. In sum, how parents perceive their infant's temperament is associated with their own tendency to engage in repetitive negative thinking, and not by their infant's observed regulatory behavior. Accordingly, parental cognition and well-being should be considered when families struggle to adapt in the perinatal period.
https://onlinelibrary.wiley.com/doi/10.1002/imhj.22160

68 Breastfeeding and Complementary Feeding are Associated With Cognition and Vision in Rural Ghanaian Infants
Mary Amoako et al. Breastfeeding and Milk-enriched cereals and Infant formula patterns were associated with cognition. Vegetable-enriched indigenous pattern improved the odds of visual acuity and language development. Interventions aimed at promoting optimal nutrition and supporting breastfeeding practices could significantly enhance developmental outcomes among children in similar settings.
https://onlinelibrary.wiley.com/doi/full/10.1002/rfc2.70025

67 Comprehensive Policy Recommendations for the Management of Spina Bifida and Hydrocephalus in Low-and Middle-income Countries
Ahmed Negida et al. The goal of this document is not limited to just raising awareness of the unmet pediatric neurosurgical needs and the importance of prevention. We envision the inclusion of the recommendations in the WHO’s Intersectoral Global Action Plan on Epilepsy and Other Neurological Disorders.
https://www.researchgate.net/publication/364088520_Comprehensive_Policy_Recommendations_for_the_Management_of_Spina_Bifida_and_Hydrocephalus_in_Low-and_Middle-income_Countries

66 Visual experience shapes functional connectivity between occipital and non-visual networks
Mengyu Tian et al. The lateralization of occipital-to-frontal connectivity in infants resembles the sighted adults, consistent with the idea that blindness leads to functional change. These results suggest that both vision and blindness modify functional connectivity through experience-driven (i.e., activity-dependent) plasticity.
https://pubmed.ncbi.nlm.nih.gov/41848400/

65 Severe visual impairment and blindness in infants: causes and opportunities for control
Parikshit Gogate et al. Neonatologists, pediatricians, traditional birth attendants, nurses, and ophthalmologists should be sensitive to a parent's complaints of poor vision in an infant and ensure adequate follow-up to determine the cause. If required, evaluation under anesthesia should be performed, which includes funduscopy, refraction, corneal diameter measurement, and measurement of intraocular pressure.
https://pubmed.ncbi.nlm.nih.gov/21731320/

64 Psychosocial burden and quality of life of parents with children with univentricular hearts compared to ASD parents and parents of heart-healthy children
Monia Schonath et al. The study confirms a higher psychosocial burden, restrictions in daily life and a lower quality of life of parents with children with univentricular hearts, compared to parents of children with simple heart defects and parents of heart-healthy children or those with other chronic diseases.
https://pubmed.ncbi.nlm.nih.gov/39364551/

63 Swedish preschool teachers’ views on and use of digital technology in preschool education
Hanna Palmér et al. Preschool teachers mentioned the importance of children being producers who actively create digital content, rather than consumers of ready-made digital software and said their view depended on how and with whom digital technology was to be used. The results must be seen in the context of Swedish preschools, where pre-school teachers are well educated and expected to plan and implement high-quality teaching with or without digital technology.
https://journal.fi/jecer/article/view/156170

62 Clinician Perspectives of Chronic Pain Management in Children and Adolescents with Cerebral Palsy and Dyskinesia
Clare McKinnon et al. In the absence of strong evidence, a strategy for implementing effective chronic pain management for children and adolescents with cerebral palsy and dyskinesia and gaining clinician consensus regarding the best practice management are recommended.
https://pubmed.ncbi.nlm.nih.gov/33251932/

61 Clinical features and aetiology of cerebral palsy in children from Cross River State, Nigeria
Roseline Duke et al. The profile of CP in this population is similar to that found in other low-income and middle-income countries (LMIC). Some risk factors identified were preventable. Prevention and management strategies for CP designed for LMIC are needed.
https://pubmed.ncbi.nlm.nih.gov/31959596/

60 Institutionalising parent carer blame
This report looks at the experiences of disabled children and their families of the process by which their needs for care and support are assessed by English local authority children’s services departments.
https://cerebra.org.uk/download/institutionalising-parent-carer-blame/

59 Cultural Adaptation of Parent-Implemented Early Communication Interventions: A Scoping Review
Maya Albin et al. We found that more clarity is required regarding how cultural adaptations are reported for communication interventions. Cultural adaptation frameworks are useful tools to guide adaptation but can be difficult to put into use in an objective manner.
https://www.growkudos.com/publications/10.1044%252F2022_ajslp-21-00286/reader

58 The relationship between perceived organisational support and emotional exhaustion in intellectual and developmental disability services
Huw Price. These findings provide evidence that perceived organisational support (POS) and mindfulness could play a preventative role in the development of burnout. As POS was the strongest predictor, it is recommended that organisations in this field do not underestimate the importance of their staff feeling valued.
https://www.emerald.com/tldr/article/doi/10.1108/TLDR-06-2025-0016/1336311/The-relationship-between-perceived-organisational

57 New directions in measuring family-centred service: the updated measure of processes of care (MPOC 2.0)
Gillian King et al. Highlights the importance of communication as a relational process involving reciprocal transactions between parents and service providers. It also highlights family well-being, service availability, and coordination of care.
https://www.tandfonline.com/doi/full/10.1080/09638288.2025.2603837?src=

56 Rooted and Rising: Black Families Navigating Racism, Hardship, and Hope
This report provides a comprehensive analysis of the experiences and well-being of Black families in the United States, utilizing the UNC-Gallup data and structured around the 3Ps Framework: Protection, Promotion, and Preservation. 6 The findings highlight the diversity within Black communities, examining many outcomes by racial identity and urbanicity, and emphasize the ongoing impact of racism and structural inequalities across various regions and settings.
https://mcusercontent.com/a3e4c116a8524739d5a3ab7c4/files/377c1a06-1aa8-97c5-7fb1-fcecec23b503/ERAC_Roots_Rising_Black_FA3M_Study.pdf

55 Investigating The Relationship Between Anxiety Level and Maternal Attachment in Mothers With a Baby in The Neonatal Newborn Care Unit
Esra Özdemir et al. As a result of the study, it was found that although mothers whose babies were hospitalized in the NICU had anxiety, their attachment to their babies was not low. It was found that there was no significant relationship between mothers' anxiety levels and attachment. However, variables such as mothers' involvement in caring for their babies, the presence of family and social support, breastfeeding and the person from whom the information was obtained (nurse/midwife), and fear of losing the baby were identified as variables influencing anxiety and attachment.
https://dergipark.org.tr/en/pub/arsagbil/article/1622671

54 The Effects of Mother Baby Yoga and Baby Massage on Attachment, Weight, and Sleep: A Randomized Crossover Study
Fatma Şule Bilgiç et al. In the study, it was observed that both interventions positively affected mother–infant attachment, sleep, and weight in the intragroup evaluation independently of each other.
https://journals.sagepub.com/doi/10.1177/10664807251360783

53 Birth prevalence and parental stress associated with neural tube defects in Amhara's public comprehensive specialized hospitals, Ethiopia, 2024
Hailemariam Gezie et al. The findings of this study indicate that the birth prevalence of NTDs is becoming a significant public health concern. Additionally, several factors contributing to increased parental stress were identified, including older parental age, the child's age, a previous history of NTDs in siblings, and the presence of a ventriculoperitoneal shunt.
https://pubmed.ncbi.nlm.nih.gov/41325354/

52 Parental responses to child pain : The role of parental and child somatic and anxiety symptoms
Maren K Wallrath et al. Mothers and fathers did not differ in somatization, anxiety symptoms and responses. Parental catastrophizing was higher if the child suffered from anxiety symptoms and from pain-related disability. Parental solicitousness was higher if parents reported more own anxiety symptoms. Younger children and girls received more solicitous responses.
https://pubmed.ncbi.nlm.nih.gov/33929596/

51 Potential Mechanisms of Lipid-Soluble Vitamins Alleviate Brain Damage in Preterm Infants: Integration of Network Pharmacology and Molecular Docking
Li Xiao et al. This study theoretically explores the potential mechanisms of vitamin therapy for preterm infant brain injury and provides a preliminary theoretical basis for the development and application of vitamins as potential functional therapeutic agents for preventing brain injury in preterm infants.
https://www.ablesci.com/scholar/paper?id=rXLQn2nqr

50 Early detection and treatment of attention deficits in preterm and at term infants with risk factors for brain damage
Thalía Harmony et al. Cognitive deficits in infants born preterm and infants at term with risk factors for brain damage are a common outcome. Attention deficits in preterm infants are related to the development of attention-deficit/hyperactivity disorder (ADHD), and therefore, there is a need for earlier evaluations and treatment procedures that are implemented before the presence of signs of ADHD.
https://www.sciencedirect.com/science/article/abs/pii/S0167876021009326

49 Protecting infants from brain damage: A focus on HIE
Lee J Martin. One cause of brain damage in infants is hypoxic-ischemic encephalopathy (HIE). It arises from reduced brain blood supply, oxygen insufficiency, and nutrient deprivation, for example, because of placental abnormalities and cardiorespiratory arrest. HIE occurs in one to three term gestation infants per 1000 live births. These babies are at high risk of death, and survivors can develop cerebral palsy, or other disorders of movement, epilepsy, and impairments in learning, memory, cognition, and emotional reactivity years later for their entire lives. The individual and family impacts are devastating, and the societal repercussions urgent.
https://www.openaccessgovernment.org/article/protecting-infants-from-brain-damage-a-focus-on-hie/197414/

48 Early care and support for young children with developmental disabilities and their caregivers in Uganda: The Baby Ubuntu feasibility trial
Carol Nanyunja et al. Early care and support provision for young children with developmental disabilities is frequently lacking, yet has potential to improve child and family outcomes, and is crucial for promoting access to healthcare and early education. We evaluated the feasibility, acceptability, early evidence of impact and provider costs of the Baby Ubuntu participatory, peer-facilitated, group program for young children with developmental disabilities and their caregivers in Uganda.
https://www.frontiersin.org/journals/pediatrics/articles/10.3389/fped.2022.981976/full

47 Suffering and parenting of babies with physical disabilities: implications for child development
Diego Rodrigues Silva. Disability can make it difficult to give meaning to the baby's expressions due to anatomical and functional particularities, leading to responses that are out of affect attunement. It is concluded that the disability disclosure is not determinant for losses in parenting. If it causes caregivers to suffer, it is possible that they have found resources to offer the same quality of parenting as caregivers in the control group. New research in Psychology could highlight the processes of engagement and maintenance of parenting in these cases.
https://www.researchgate.net/publication/361396863_Suffering_and_parenting_of_babies_with_physical_disabilities_implications_for_child_development

46 A Baby Named Louise: Medical Ethics, Informed Consent and the Value of Disabled Infant Lives in the Summer of 1978
Vicky Long et al. The article examines how attitudes towards disability and infancy shaped informed consent and medical ethics in late 1970s Britain. It focuses on a baby who shared her year, month of birth, and forename – Louise - with the first baby conceived through in vitro fertilisation. This Louise, born with spina bifida myelomeningocele, died within a month of birth from infection, dehydration, and starvation. The article reveals how progress treating spina bifida was deliberately reversed in the 1970s, when some doctors and policymakers argued that it was better for babies to die, than survive with significant impairments. This shift occurred because disability was seen as a burden and babies as lacking personhood.
https://academic.oup.com/shm/advance-article/doi/10.1093/shm/hkaf033/8509256?login=false

45 “Preschool complements home; home complements preschool”: Immigrant parents, teachers, and community intercultural mediators in interaction
Mila Schwartz et al. The study is grounded in several theoretical constructs: home-preschool continuity, model of parental involvement, language education and family language policies, linguistically and culturally responsive teaching, and inclusive education. The data sources included interviews with parents and intercultural community mediators from the Bnei Menashe immigrant community, teachers, and classroom observations at a selected preschool.
https://www.sciencedirect.com/science/article/abs/pii/S2210656126000127

44 Assessing infant motor development from afar: reflections on remote assessment of infant motor development
Maria Mc Namara et al. Reliable remote assessment also enables broader research participation and supports hybrid clinical models that maintain continuity of care when in-person visits are not feasible. These results strengthen confidence in digital modes of assessment and highlight remote AIMS administration as a viable, scalable approach to early developmental surveillance. The findings offer particular benefit for infants who face the greatest barriers to timely evaluation and intervention.
https://pubmed.ncbi.nlm.nih.gov/26133571/

43 Mother-Infant Contingent Vocalizations in 11 Countries
Marc H Bornstein et al. These findings point to the beginnings of dyadic conversational turn taking. Despite broad differences in the overall talkativeness of mothers and infants, maternal and infant contingent vocal responsiveness is found across communities, supporting essential functions of turn taking in early-childhood socialization.
https://pubmed.ncbi.nlm.nih.gov/26133571/

42 Pain Measurement in Infants and Children With and at Risk for Intellectual Disabilities
Morgan MacNeil et al. There is a considerable dearth in the literature surrounding pain measures and pain indicators in this population, along with small sample sizes and inconsistent findings reported across studies. Future research is needed to compare pain responses across different age groups and intellectual disability diagnoses to neurotypical peers.
https://onlinelibrary.wiley.com/doi/full/10.1002/pne2.70015

41 Predicting off-track development in infants aged 0–6 months in low-resource settings using machine learning
Faith Neema Benson et al. This study highlights the burden of developmental delays in low-resource settings. Machine learning models show promise for early risk prediction and targeted intervention, though further validation is recommended.
https://www.nature.com/articles/s41390-026-04761-7

40 Building parent/caregiver confidence and re-engaging in parent occupations: WeCare programme for parents/caregivers post developmental disability diagnosis
Anoo Bhopti et al. This study provides preliminary evidence, highlighting the critical role of capacity-building and structured programmes, like WeCare, in empowering parents and caregivers around the time of diagnosis. The programme was highly rated by participants, with peer facilitators seen as particularly valuable. Parents reported increased understanding of their child’s diagnosis, greater awareness of resources and strong engagement with the parent occupation categories, showing promise in enhancing caregiver outcomes around the time of diagnosis that may be feasible for wider implementation.
https://bmjpaedsopen.bmj.com/content/9/1/e003733

39 Causes for Admission, Mortality and Sepsis Profile of Babies Admitted to Special Care Baby Unit of Teaching Hospital Batticaloa, Sri Lanka
Shihab A. M. F et al. These findings revealed though sepsis was the common indication for admission to SCBU, only around 4% blood cultures revealed a significant positive growth. Further, pulmonary haemorrhage was the major cause for mortality among neonates.
https://bmj.sljol.info/articles/10.4038/bmj.v19i2.89

38 Clinical Profile and Outcomes of Retinopathy of Prematurity in Neonatal Intensive Care Unit Neonates
Pabbu Soumya et al. ROP continues to be a significant morbidity among NICU neonates, particularly those with extreme prematurity and multiple systemic risk factors. Early identification and timely therapeutic interventions remain crucial in achieving favorable structural and visual outcomes.
https://www.researchgate.net/publication/400804932_Clinical_Profile_and_Outcomes_of_Retinopathy_of_Prematurity_in_Neonatal_Intensive_Care_Unit_Neonates

37 Retinopathy of prematurity in infants with a gestational age
Elvira I. Saydasheva et al. Comparative analysis of active retinopathy of prematurity in infants with a gestational age 27 weeks in 2014 and 2023 demonstrated an increased frequency of severe disease forms and visual impairment, despite unified treatment protocols and earlier retinal laser photocoagulation in 2023.
https://www.researchgate.net/publication/400162591_Retinopathy_of_prematurity_in_infants_with_a_gestational_age

36 Cerebral Palsy at Age 5 Has Better Functional Outcome in Very Premature New- borns Than in Asphyxic Term Newborns
Daniel Virella et al. Cerebral palsy (CP) is a group of permanent, but not unchanging, disorders of movement and/or posture and of motor function, which are due to a non-progressive interference, lesion, or abnormality of the developing/immature brain (SCPE). Disorders of the development of the very premature brain and asphyxic lesion of the brain in term newborns are some of its most important causes. Do the functional outcomes of CP in 5-years-old children differ depending on their aetiology?
https://www.nature.com/articles/pr2011305

35 A look at the baby as an active subject in the daycare context: development, learning and teacher training
Bruna Detoni, Andreia Mendes dos Santos. ...A positive impact was observed in the perception of professionals after the training, who described babies as more communicative, having a multimodal language and intentionality in their relationships with others and with objects.
Conclusion: The study demonstrates a change in the way professionals view babies, which will impact on the relationship they establish with them, and the quality of the environment they offer in educational spaces.
https://babiesjournal.org/index.php/babies/article/view/3

34 Interactions among babies in daycare: what do studies show us?
Fabiana De Oliveira. The study is based on Colwyn Trevarthen's theory of innate intersubjectivity; thus, we consider that babies always seek out others to interact with, provoking others. We believe this sociability occurs between babies and adults, but also between babies and their peers, hence the choice to conduct research in a collective daycare setting....findings confirm the need of broadening research based on new technologies that allow studies to be conducted with both newborns and “older babies”.
https://www.researchgate.net/publication/400628074_Interactions_among_babies_in_daycare_what_do_studies_show_us

33 Quality of life measure for children with Epilepsy: A psychometric evaluation of the Italian version
Tagliaferro C et al. The Italian version of the CHEQOL-25 measure demonstrates strong psychometric properties (consistent with the original version) and reinforces the value of assessing quality of life in children with epilepsy across diverse cultural contexts.
https://www.sciencedirect.com/science/article/pii/S1525505025005979?via%3Dihub

32 Dutch rehabilitation physicians’ perspectives on contracture management in children with spinal muscular atrophy: challenges in a changing landscape
Oude Lansink I L B et al. This study aimed to describe current approaches to contracture management among Dutch pediatric rehabilitation physicians caring for children with SMA receiving DMT, and to explore the underlying considerations and clinical reasoning that inform their decisions on contracture management...
https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2025.1670391/full

31 The experiences of parents of children with disabilities receiving healthcare services: Negative emotions and associated situations
King, G. et al. This study explored the negative emotions expressed by parents of children with disabilities when describing their experiences with pediatric health care. There were 106 mentions of negative emotional experiences, including stress, frustration, trauma, upset, anger, emotional exhaustion, and fear....
https://canchild.ca/research-in-practice/family-centred-service/fcs-publications-and-presentations/

30 Early Intervention Developmental Programming and Childhood Academic Outcomes
Stingone J A et al. National monitoring surveys indicate that developmental disabilities among US children constitute a substantial public health issue. While scientific literature documents the benefits of targeted, developmental interventions, there has been less study of formal early intervention (EI) services...
https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2844817?guestAccessKey=1752379a-ebe4-4802-bd77-7ac715297d4f

29 Perspectives in childhood-onset disabilities: integrating 21st-Century concepts to expand our horizons
Rosenbaum P L et al. 21st-century thinking about childhood-onset neurodisability builds on WHO’s ICF framework for health, expanding well beyond traditional primary biomedical foci on diagnosis and management and toward a focus on functioning and belonging.New emphases put family at the centre, attending to family voices and prioritizing family wellbeing as targets for intervention equal to a focus on the child.
https://pubmed.ncbi.nlm.nih.gov/39185771/

28 Towards optimising children’s capability and tackling relative child poverty in high-income countries: the cases of Japan, Sweden and the UK since 2000
Hajime Takeuchi et al. We question why child poverty still prevails even in high-income countries, such as Japan, Sweden and the United Kingdom. We address the intersection between social relations and individual experiences that should be considered....
https://pubmed.ncbi.nlm.nih.gov/35848789/

27 Canadian Perspectives in Adopting and Implementing Recommended Clinical Labels in Preschool Speech-Language Pathology
Csercsics A L et al. Major facilitators included improved communication, better caregiver understanding of children's communication, positive feedback from caregivers, SLPs' increased confidence in sharing labels, and improved access to services for children.
https://pubs.asha.org/doi/10.1044/2024_AJSLP-24-00272

26 Understanding burnout among parents of children with complex care needs: A scoping review informed by a stakeholder consultation
The objective of this scoping review was to investigate the aims, methods, and results of research on burnout among parents of children with complex care needs and to inform the interpretation as well as implications for research and practice through a stakeholder consultation.
https://osf.io/preprints/psyarxiv/754yp

25 Understanding Speech-Language Pathology from the Standpoint of Families: A Systemic Analysis
Underwood K etal. Analysis of data illustrates the pervasiveness, organizational structure, and governance of speech and language pathology (SLP) in early childhood, leading to professional discourses of childhood and disability in early intervention...
https://www.mdpi.com/2076-0760/13/12/656

24 Using the ICF in transition research and practice? Lessons from a scoping review
Nguyen T et al. Two significant principles of the ICF for implementation in research and practice include its universality (disability affects all people), and continuity (disability exists along a continuum).
https://www.sciencedirect.com/science/article/abs/pii/S0891422217302974

22 Views of Parents of Children With Down Syndrome on Early Intervention Services in Turkey.
Tomris G et al. Problems, expectations, and suggestions
https://journals.lww.com/iycjournal/Fulltext/2022/04000/Views_of_Parents_of_Children_With_Down_Syndrome_on.4.aspx

21 Tangata Whenua Community and Voluntary Sector Research Centre Incorporated (Community Research)
Provides podcasts, resources and newsletters, and runs webinars to support and inform the Tangata Whenua, Community, and Voluntary Sector. Provides a Code of Practice for community research.
https://communityresearch.org.nz/whakatauki/about-community-research/history/

20 Improving quality of teaching and child development: A randomised controlled trial of the leadership for learning intervention in preschools
Siraj I. et al. Research indicates that high quality early childhood education and care (ECEC) confers a wide range of benefits for children, yet quality in ECEC remains inconsistent.
https://www.researchgate.net/publication/366887953_Improving_quality_of_teaching_and_child_development_A_randomised_controlled_trial_of_the_leadership_for_learning_intervention_in_preschools

19 Child and Parent Perspectives on Daily Functioning after Perinatal Brain Injury
Baak L M. To examine the most significant consequences from a patient perspective, this questionnaire study explored the strengths and difficulties in daily functioning after perinatal brain injury, by child self-report and parent-proxy report.
https://www.sciencedirect.com/science/article/pii/S2950541025000341?via%3Dihub

I8 nclusion in Preschool as a Catalyst to Enhance the Quality of Comprehensive Community-Based Early Childhood Programs
Guralnick M. et al. Considered here is the potential for early childhood inclusive practices based on a commonly shared developmental framework to facilitate... partnerships.
https://journals.lww.com/iycjournal/fulltext/2025/10000/inclusion_in_preschool_as_a_catalyst_to_enhance.2.aspx

17 Where are children with disabilities in efforts to address violence?
Eldred E et al. Despite efforts to get disability on the agenda (for the Conference by civil society organisations), there was a notable gap in commitments on preventing and responding to violence against children with disabilities.
https://researchonline.lshtm.ac.uk/id/eprint/4677610/3/Eldred-etal-2025-Children-with-disabilities-are-missing-from-global-efforts.pdf

16 Early childhood educators' perspectives of the social functioning and strengths of children exposed to intimate partner violence (IPV)
Schulz M L et al. The early educational environment can be a key factor promoting resilience outside of the family, with early educators in an ideal position to identify a broad range of social challenges, strengths and needs of children exposed to IPV.
https://www.sciencedirect.com/science/article/pii/S0145213425000250

15 Community-based primary care approaches to supporting families of children with developmental disabilities
Magidigidi-Mathiso L et al. Experts’ perspectives using the capabilities framework. The findings highlight the significance of interdisciplinary approaches.
https://www.researchgate.net/profile/Gerard-Filies-2/publication/398772017_Community-based_primary_care_approaches_to_supporting_families_of_children_with_developmental_disabilities_Experts'_perspectives_using_the_capabilities_framework/links/6942646c27359023a00d6c65/Community-based-primary-care-approaches-to-supporting-families-of-children-with-developmental-disabilities-Experts-perspectives-using-the-capabilities-framework.pdf

14 Quality of Life of Parents of Premature Infants - A Systematic Review and Meta-Analysis
Shi En Yip S A et al. Quality of life (QOL) of parents following the birth of a premature infant is substantially affected, necessitating a comprehensive understanding of its determinants to guide effective interventions.
https://pubmed.ncbi.nlm.nih.gov/41533378/

13 Supporting Infants, Toddlers, and Families Experiencing Homelessness: Strategies for Early Childhood Development Providers
It is important that children and families experiencing homelessness have access to high-quality early learning development opportunities which can mitigate the harmful effects of homelessness.
https://mcusercontent.com/a3e4c116a8524739d5a3ab7c4/files/9ecc63fb-6ced-ec71-4a5a-f3cfec479b10/Supporting_Infants_Toddlers_and_Families_Experiencing_Homelessness.pdf

12 Acceptance and Commitment Training for Parents of Children With Autism Spectrum Disorder
Si Ni Li et al. Parents of children with autism spectrum disorder (ASD) experience significant stress and caregiving burden and urgently require targeted psychological support and parenting guidance.
https://pubmed.ncbi.nlm.nih.gov/41505131/

11 No safety net for new parents, as nine out of ten report feeling overwhelmed
NCT, the UK’s charity for pregnancy, parents and progress, reports what it is like to be a parent today. The report reveals six out of ten new parents say they feel lonely or isolated at least some of the time (62%), with more than one in ten (12%) saying they always felt lonely after having a baby.
https://www.nct.org.uk/about-us/media/news/no-safety-net-for-new-parents-nine-out-ten-report-feeling-overwhelmed

10 A Decade of Science Informing Policy: The Story of the National Scientific Council on the Developing Child
This retrospective report tells the history of how the National Scientific Council on the Developing Child came to be, what its impact has been, how its members work, and why the Council has made a difference.
https://developingchild.harvard.edu/resources/decade-science-informing-policy-story-national-scientific-council-developing-child/

9 An exploration of the value of Marte Meo Therapy in establishing, re-establishing and supporting attachment relationships
Maughan G. ‘firstly identify and then activate and develop caregivers’ skills’
https://childrensresearchnetwork.org/knowledge/resources/an-exploration-of-the-value-of-marte-meo-therapy-in-establishing-re-establishing-and-supporting-attachment-relationships/

8 An umbrella review of the characteristics of resiliency-enhancing interventions for children and youth with disabilities
Tajik-Parvinchi D. https://www.tandfonline.com/doi/full/10.1080/09638288.2024.2374502

7 Multisite Study Evaluating the Benefits of Early Intervention via Telepractice
Behl D D. This study sought to determine the effectiveness of telepractice as a method of delivering early intervention services to families of infants and toddlers who are deaf or hard of hearing.Infants & Young Children
http://journals.lww.com/iycjournal/Fulltext/2017/04000/A_Multisite_Study_Evaluating_the_Benefits_of_Early.5.aspx

6 Defining and measuring what matters: quality of life for children with disabilities
Smythe T et al. The quality of life of children with disabilities improves when health systems move beyond survival-oriented biomedical interventions and metrics, and promote participation and wellbeing. Quality of life should be considered and measured...
https://www.thelancet.com/journals/lanchi/article/PIIS2352-4642(25)00370-0/abstract

5 Putting the Pieces back Together: Centring Children and Their Protection in the Humanitarian Response in Gaza
Despite prolonged denial of humanitarian access — a grave violation of children’s rights on its own — communities and child protection practitioners in Gaza have worked tirelessly to protect children, their families, and communities.
https://alliancecpha.org/sites/default/files/technical/attachments/Putting%20the%20Pieces%20back%20Together_Centring%20Children%20and%20Their%20Protection%20in%20the%20Humanitarian%20Response%20in%20Gaza_1.pdf

4 Scaling parenting programs for early child development in four low- and middle-income countries
Aboud F et al. Planning for scale needs to be done at the start by considering facilitative design features, selection of a workforce, and ownership by the government. Ongoing implementation research conducted with different stakeholders is needed...
https://www.frontiersin.org/journals/public-health/articles/10.3389/fpubh.2025.1604308/full

3 Occupational Therapist–Teacher Collaboration in Inclusive Education in Québec: A Qualitative Descriptive Study
Ianni L et al. In inclusive schools, collaboration between occupational therapists (OTs) and teachers has the potential to build capacities among these school-team members working with students with disabilities. Current evidence supports multi-tiered delivery models, such that OT interventions are integrated within the context of school life. Collaboration, however, is a complex multifaceted phenomenon that poses systemic, organizational, or interpersonal challenges.
https://journals.sagepub.com/doi/10.1177/00084174241310078

2 Early Childhood Development, Adversity, and Resilience: A review for pediatric health care providers
This interactive, self-paced learning module offers interconnected lessons on key science related to early childhood development, adversity, and resilience.
https://developingchild.harvard.edu/resources/toolkit-and-learning-module/pediatric-health-care-providers-review/

1 Co-Designed Collaborative Digital Platform for Early Child Development
Achilleos A et al. An Innovative Web and Mobile Application for Practitioners and Guardians. Addresses the need for improved digital solutions in Early Childhood Development and Intervention (ECDI) by offering a more collaborative platform than existing applications.
https://doaj.org/article/b7af05b0af594685aa21d6fe88ce6cdb