Publications relevant to early support

22 End Coercion in Maternity Care in the UK - Report
We heard from nearly 300 people who shared their experiences of coercion: whether directly as the pregnant person affected, or those who witnessed coercive actions from colleagues or others within the system. Their experiences demonstrate patterns of behaviour that compromise informed consent, bodily autonomy, and trust in care.
https://birthrights.org.uk/campaigns-research/end-coercive-practices-in-maternity-care/

21 Disfigured. On Fairy Tales, Disability, and Making Space
Ananda Leduc. Challenges the ableism of fairy tales and offers new ways to celebrate the magic of all bodies. In fairy tales, happy endings are the norm – as long as you’re beautiful and walk on two legs. After all, the ogre never gets the princess. And since fairy tales are the foundational myths of our culture, how can a girl with a disability ever think she’ll have a happy ending?
https://amandaleduc.com/books/disfigured/

20 Rights in Practice for People with a Learning Disability
This book aims to raise awareness about the possibility of achieving the goals of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD), in order for all disabled people to enjoy the benefit of human rights.
https://link.springer.com/book/10.1007/978-981-99-5563-3

10 Day by Day: Emotional Wellbeing in Parents of Disabled Children
The impact of finding out your child is disabled can be wide ranging. The author's experience as a psychologist and parent of a disabled child informs this book which focuses on what helps, and hinders, parent-carers' emotional wellbeing.
https://www.amazon.co.uk/Day-Emotional-Wellbeing-Disabled-Children/dp/1911383531

18 Children’s Palliative Care
An International Case-Based Manual
https://link.springer.com/book/10.1007/978-3-030-27375-0

17 Vax Facts: What to Consider Before Vaccinating at All Ages & Stages of Life
by Paul Thomas and DeeDee Hoover. 'A one-stop-shop for all the information parents and guardians need to make an informed choice about childhood vaccinations. The challenge for most who are wrestling with whether to give a vaccine is a lack of understanding about what information they really need to make an informed decision.'

16 Parasports for cerebral palsy: Thinking and ‘prescribing’ beyond the Paralympics
Julia E. Hanes et al. We outline sport eligibility based on gross motor function and available adaptations. Rather than viewing parasport as an option for ‘athletic’ children, evidence supports treating it as an essential element of comprehensive care—uniquely combining therapeutic physical activity benefits with social inclusion, identity development, and community integration.

15 Au service de la cause
By Ernestine Antoinette Ngo Melha. Dans un monde en mutation, le sens de l’engagement évolue. Dans cet ouvrage, Ernestine Antoinette Ngo Melha retrace son parcours d’une trentaine d’années d’engagement pour la cause du handicap.
https://www.editions-harmattan.fr/catalogue/livre/au-service-de-la-cause/81880

14 The Systems View of Life
Fritjof Capra et al. Over the past thirty years, a new systemic conception of life has emerged at the forefront of science. New emphasis has been given to complexity, networks, and patterns of organisation leading to a novel kind of 'systemic' thinking.
https://www.amazon.co.uk/Systems-View-Life-Unifying-Vision/dp/1107011361/ref=sr_1_1?s=books&ie=UTF8&qid=1420194903&sr=1-1&keywords=systems+view+of+life

13 How Speech Pathology helps address swallowing issues - video
https://www.youtube.com/watch?v=SSqzH55eSg4

12 Your child, your family and early childhood intervention: Family Perspectives - video
https://www.youtube.com/watch?v=DbuV4isNLDI

11 Coaching and Empowering Caregivers of Children with Hearing Loss, an approach to foster well-being
Travers J. The author shares her experience serving low and middle income countries with the intention to scale up essential ways practitioners can effectively coach and empower caregivers. Five domains of caregiver well-being are spelled out in the book...
https://www.greatervoice.com/publications/coaching-and-empowering-caregivers-of-children-with-hearing-loss/

10 Global Impacts on Childhood Social Development Building Resilience Amid Conflict, Environmental Degradation, and Climate Change
Oberg C N et al. Combines insights from disciplines as diverse as developmental psychopathology, pediatrics, and public policy to offer a detailed description of the impact of global crises, such as armed conflict, climate change, and environmental degradation, on the developing child.
https://www.routledge.com/Global-Impacts-on-Childhood-Social-Development-Building-Resilience-Amid-Conflict-Environmental-Degradation-and-Climate-Change/Oberg-Hodges/p/book/9781032774879

9 Total Load Theory: Transforming Lives in Autism, ADHD, LD, SPD, and Mental Health
Lemer P S. About one in six children and many adults are diagnosed with neurodevelopmental disorders. What causes autism, attention, learning disabilities, and anxiety?
https://childrenshealthdefense.org/store/total-load-theory-transforming-lives-in-autism-adhd-ld-spd-and-mental-health/

8 Insights on Family Policies
A series published by the European Observatory on Family Policy, a joint initiative by COFACE Families Europe and Odisee Centre for Family Studies, presenting evidence in dossiers on integrated approaches to family support.
https://coface-eu.org/discover-the-insights-on-family-policy/

7 Children’s Palliative Care: An International Case-Based Manual
Downing J (ed). Endorsed by International Children’s Palliative Care Network (ICPCN) - an international case-based clinical focus, with a focus on the child and the family. Employs a multi-disciplinary and international emphasis. Integrates physical, psychological, social and spiritual care
https://link.springer.com/book/10.1007/978-3-030-27375-0

6 Premature Infants: New Paradigms in Their Follow-Up
By Dr. Norma Aspres, Iris Schapira, Rachelle Zaid Aspres N et al. Currently, the survival of very low birth weight and low gestational age infants is possible. This highlights the challenge that the healthcare team must face in achieving adequate follow-up of the growth, development, and survival of these patients.
https://www.youtube.com/watch?v=gO0wj-xVrmU
https://www.imedba.com/web/libro_prematuros.html

5 Alcohol, Drugs and Medication in Pregnancy, the Outcome for the Child
Riley E P (ed). The use of alcohol and drugs in pregnancy is known to affect the developing foetus and can cause long-term difficulties. Many of these children will need long-term substitute care
https://www.wiley.com/en-gb/Alcohol%2C+Drugs+and+Medication+in+Pregnancy%3A+The+Long-Term+Outcome+for+the+Child-p-9781898683889

4 Death of critical thinking? VIDEO
There are some very interesting observations here about tribal opinion for those of us trying to bring about change.
https://www.youtube.com/watch?v=c1YH2T36q5U

3 Blach Dads Matter
It has long been known that father presence in the household is important for the positive well-being of families, neighborhoods, and youth. Dads who actively participate in the lives of their families provide a steady source of stability and support.
https://fathersincorporated.com/black-dads-matter/

2 Early Relational Health
The dynamic process of mutual, meaningful, and affirming moments of connection in the youngest relationships, is foundational in shaping lifelong physical, behavioral, and mental health.
https://nap.nationalacademies.org/resource/29234/Report_Highlights_Early_Relational_Health.pdf

1 Perspectives on Palliative Care for Children and Young People: A Global Discourse
Pfund R (ed). An important move towards ensuring that all children and their families, regardless of geographical location, gender, ethnicity or socio-economic class have equal and guaranteed access to comprehensive paediatric palliative care services.
https://www.crcpress.com/Perspectives-on-Palliative-Care-for-Children-and-Young-People-A-Global/Pfund-Kerry-Fowler/p/book/9781846193330